Demographics of participants
| Decade of diagnosis | |
| Pre-1970 | 5 participants |
| 1970s | 3 participants |
| 1980s | 4 participants |
| 1990s | 2 participants |
| Post-2000 | 7 participants |
| Stage of life at diagnosis | |
| Child | 8 participants |
| Teenager | 2 participants |
| Young adult (under 25) | 3 participants |
| Adult (25 and over) | 8 participants |
| Age at time of first interview | |
| 20s | 3 participants |
| 30s | 3 participants |
| 40s | 7 participants |
| 50s | 4 participants |
| 60s | 4 participants |
| Employment situation | |
| Full time (standard hours) | 10 participants |
| Full time (shift work) | 2 participants |
| Part time | 3 participants |
| Student | 2 participants |
| Unemployed/on sick leave | 2 participants |
| Retired | 2 participants |
| Last educational qualification taken | |
| None | 2 participants |
| GCSE or equivalent | 3 participants |
| A level or equivalent | 8 participants |
| Degree level or equivalent | 5 participants |
| Postgraduate level | 3 participants |
| Gender | |
| Male | 9 participants |
| Female | 12 participants |
| Ethnicity | |
| White British | 17 participants |
| White other | 1 participant |
| Black Caribbean | 3 participants |