Stakeholders’ ratings of levels of involvement, MS-related self-efficacy and emotional states of pleasure, arousal and dominance across visits 1–8
| Parameter | Visit 1 | Visits 2–4 | Visits 5–7 | Visit 8 |
| USE-MS* | 20 (15–27) | 21 (15–27) | 21 (15–27) | 21 (19–24) |
| Involvement check* | 5 (4 – 5) | 5 (4 – 5) | 5 (5 – 5) | 5 (5 – 5) |
| SAM pleasure* | 8 (5 – 9) | 8 (5 – 9) | 9 (5 – 9) | 8 (5 – 9) |
| SAM arousal* | 4 (1 – 9) | 4 (1 – 8) | 5 (1 – 9) | 4 (1 – 9) |
| SAM dominance* | 5 (2 – 9) | 5 (3 – 7) | 6 (4 – 9) | 6 (3 – 8) |
| PAS | – | – | – | 90 (84–90) |
Visit 1: project kick-off meeting; visit 2: co-creation workshop 1 on qualitative research methods; visit 3: co-creation workshop 2 on data collection and analysis; visit 4: co-creation workshop 3 on exercise development; visit 5: music co-selection meeting; visit 6: co-creation workshop 4 on findings co-dissemination (article co-writing, poster co-writing and co-presentation, and youth culture radio station co-report); visit 7: final video recording; visit 8: closing event.
*Data are median (minimum–maximum).
MS, multiple sclerosis; PAS, PPI Assessment Survey; PPI, patient and public involvement; SAM, Self-Assessment Manikin; USE-MS, Unidimensional Self-Efficacy Scale for Multiple Sclerosis.