Demographics of survey participants
| Demographics | |||
| Initial survey | n=417 | Interim survey | n=373 |
| Experience | Experience | ||
| Healthcare professional | 285 (68.3%) | Healthcare professional | 258 (69.2%) |
| Patient and/or carer | 132 (31.7%) | Patient and/or carer | 115 (30.8%) |
| Gender | Gender | ||
| Female | 191 (45.8%) | Female | 179 (48.0%) |
| Male | 215 (51.6%) | Male | 180 (48.3%) |
| Prefer not to say | 7 (1.7%) | Prefer not to say | 6 (1.6%) |
| Prefer to self-describe | 1 (0.2%) | Prefer to self-describe | 1 (0.3%) |
| Unknown | 3 (0.7%) | Unknown | 7 (1.9%) |
| Age | Age | ||
| 15–24 years | 5 (1.2%) | 15–24 years | 11 (2.9%) |
| 25–35 years | 88 (21.1%) | 25–35 years | 81 (21.7%) |
| 35–44 years | 140 (33.6%) | 35–44 years | 107 (28.7%) |
| 45–54 years | 90 (21.6%) | 45–54 years | 77 (20.6%) |
| 55–64 years | 61 (14.6%) | 55–64 years | 55 (14.7%) |
| 65–74 years | 19 (4.6%) | 65–74 years | 18 (4.8%) |
| 75–84 years | 3 (0.7%) | 75–84 years | 9 (2.4%) |
| 85+ years | 0 (0%) | 85+ years | 3 (0.8%) |
| Prefer not to say | 7 (1.7%) | Prefer not to say | 5 (1.3%) |
| Unknown | 4 (1.0%) | Unknown | 7 (1.9%) |
| Country | Country | ||
| UK | 372 (87.9%) | UK | 322 (86.3%) |
| South Africa | 17 (4.0%) | The Netherlands | 15 (4.0%) |
| Australia | 8 (1.9%) | Australia | 14 (3.8%) |
| USA | 8 (1.9%) | South Africa | 9 (2.4%) |
| The Netherlands | 6 (1.4%) | Ireland | 3 (0.8%) |
| Austria | 1 (0.2%) | Canada | 1 (0.3%) |
| Ghana | 1 (0.2%) | Germany | 1 (0.3%) |
| Ireland | 1 (0.2%) | Italy | 1 (0.3%) |
| Kenya | 1 (0.2%) | New Zealand | 1 (0.3%) |
| Saudi Arabia | 1 (0.2%) | Pakistan | 1 (0.3%) |
| Sierra Leone | 1 (0.2%) | Singapore | 1 (0.3%) |
| Tanzania | 1 (0.2%) | Switzerland | 1 (0.3%) |
| Trinidad and Tobago | 1 (0.2%) | USA | 1 (0.3%) |
| Unknown | 4 (1.0%) | Unknown | 2 (0.5%) |