Table 1

Participant characteristics and assessments used in this study

Participant characteristics and assessments (assessments will be collected in a random order to avoid order effect)Phase 1Phase 2
T1T2T3
Participant identifier (ID)XXX
AgeXX
GenderXX
MS phenotype*XX
Disease durationXX
EDSS†XX
DMT‡XXX
(Pre-final) German version of Unidimensional Self-Efficacy Scale for Multiple SclerosisXXX
Qualitative cognitive interviewX
Resilience Scale, short versionXX
General Self-Efficacy ScaleXX
Multiple Sclerosis International Quality of Life questionnaireXX
Hospital Anxiety and Depression ScaleXX
Neurological Fatigue IndexXX
  • *Relapsing-remitting; primary progressive; secondary progressive multiple sclerosis.95

  • †EDSS groups: 0–4.0; 4.5–6.5; 7.0–7.5; 8.0–9.0.30

  • ‡(a) No DMTs; (b) low effective DMTs: interferon-b 1a and 1b, pegylated interferon-b 1a, glatiramer acetate, dimethyl fumarate, teriflunomide, azathioprin, intravenous immunoglobulins; (c) high effective DMTs: alemtuzumab, cladribine, fingolimod, natalizumab, ocrelizumab, cyclophosphamide, mitoxantrone, rituximab.96 ,97

  • DMT, disease modifying treatment; EDSS, Expanded Disability Status Scale.