Table 2

LTCQ item responses (n=1211)

ItemNeverRarelySometimesOftenAlwaysMissingNot applicable†ICCC+
1. Able to cope well with health conditions3%10%29%26%31%1.50%0.059
2. Able to fulfil responsibilities12%15%20%18%32%1.90%0.037
3. Able to be as physically active as you wanted21%20%21%17%20%1.20%0.023
4. Felt in control of daily life8%13%22%21%35%1.30%0.064
5. Able to take part in activities you enjoy16%22%22%17%21%1.40%0.035
6. Felt that your home is suitable for your needs4%5%15%18% 56% 1.50%0.040
7. Felt safe at home2%4%10%19% 64% 1.20%0.028
8. Felt safe outside the home9%10%23%18%38%2.00%0.060
9. Felt bothered by symptoms*9%12%33%26%19%1.50%0.039
10. Felt more dependent on others than you wanted*19%13%20%21%27%1.00%0.027
11. Felt lonely due to health conditions*34%15%24%15%11%1.00% 0.036
12. Worried about being treated differently*39%17%25%10%7%1.50%0.053
13. Found health/other services difficult to cope with* 20% 13%19%6%3% 2.20%36% 0.037
14. Found treatments difficult to cope with* 31% 21%19%8%4% 1.40% 17% 0.033
15. Felt that your health conditions made you unhappy*20%16%31%18%13%1.30%0.068
16. Felt you knew enough about your health conditions5%11%24%26%32%2.10%0.005
17. Had enough social contact with people5%13%21%21%38%2.10%0.052
18. Had enough support to cope well with health conditions4% 9%21%25% 40% 1.40%0.060
19. Felt confident in managing health conditions6%8%23%22%40%1.20%0.052
20. Able to live your life as you want16%17%20%18%28%1.00%0.043
  • +ICCC for item responses across recruiting GP practices. A coefficient of 1 would indicate that all responses within a given cluster (practice) were identical, that is, all variance in responses is explained by cluster; coefficients approaching zero indicate negligible variance in responses across clusters (practices).

  • Bold values indicate ceiling effects for individual items.

  • *Questions 9–15 are reverse-scored, that is, ‘never’ is the most positive response option.

  • †Questions 13 and 14 have an additional response option: “have not received any health-related services/treatments in the past 4 weeks”. For analysis these responses were coded as ‘never’.

  • GP, general practitioner; ICCC, intracluster correlation coefficient; LTCQ, Long-Term Conditions Questionnaire.